UK Patient Organisations

UCB works with a number of patient and charitable organisations. In order that these activities are transparent, clause 23.7 of the UK ABPI Code of Practice requires that each company must make publicly available, at a national or European level, a list of patient organisations to which it provides financial support and/or significant indirect/non-financial support, which must include short descriptions of the nature of the support.

The following list details those patient organisations that have been financially supported by UCB in the UK and provides a short description of the activities commenced on or after 1st January 2010 until the publication of this document.

Parkinson’s Disease Society/Parkinson’s UK
i) Support for a Coalition Project Manager position to support ‘The Parkinson’s Coalition’ - the objective of which is to ensure that relevant groups of HCPs have appropriate & up to date information & resources to help deliver high quality care for people with Parkinson’s disease.
ii) Support towards a parliamentary reception – the objective of which is to provide an opportunity for people affected by Parkinson’s to meet with MPs and Peers to discuss the ‘Fair Care for Parkinson’s’ campaign.
iii) Charitable donation.
The Cure Parkinson's Trusti) Support for organisation of patient meetings, the objective of which is to present an opportunity for people with Parkinson’s to discuss a variety of issues with scientists, HCPs and other patients.
ii) Support to fund patient advocates to attend the World Parkinson’s Congress, to enable effective and constructive interaction between them & those who research or treat Parkinson’s and those who have or experience Parkinson’s in their daily lives.
RLS UK/EKBOM Syndrome AssociationSupport towards various patient disease awareness programmes designed to increase the awareness of the condition.
Epilepsy Action (British Epilepsy Association)i) Support towards Sapphire Epilepsy Nurses/ Sapphire Scheme Coordinator; (a scheme designed to enhance the existing epilepsy service for patients with epilepsy).
ii) Support for various corporate activities (conference, young people’s workshops, production of a DVD for management of epilepsy in prisons for disease awareness & the benefit of the patients.
iii) A grant towards an activity intended to raise awareness of all aspects of epilepsy.
Epilepsy ScotlandSupport towards the production of various epilepsy leaflets designed to increase general awareness of the disease/educate patients.
National Society for Epilepsyi) Support towards the building of an International Epilepsy Research Centre at the Chalfont St Peter site.
ii) Support for Epilepsy Information Network/ various corporate activities designed to support patients with epilepsy.
iii) Support towards organisation of various educational meetings.
British Lung Foundation & Breathe Easy WindsorAn unrestricted grant towards various charitable activities carried out by these 2 patient organisations.
Joint Epilepsy CouncilSupport towards various corporate activities of the Joint Epilepsy Council of the UK and Ireland (JEC); an umbrella organisation which exists to represent the united voice of the voluntary sector and presents evidence based views on the need to improve services for people with epilepsy, their families, and carers in the UK and Ireland.
National Centre for Young People with EpilepsyUnrestricted grant for this national charity providing specialist services and support for children and young people with epilepsy and other neurological conditions.
National Rheumatoid Arthritis SocietySupport/unrestricted grant for corporate activities designed to provide information, education and support for people with RA & their families.
SILA (The Sarcoidosis Charity)An unrestricted grant towards various corporate activities designed to benefit patients with the condition.
Arthritis Research UKAn unrestricted grant towards various corporate activities designed to benefit patients with the condition.

Updated February 2011